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Who are we?
We are members of the CMV LISTSERV because we have some interest in
CMV or Cytomegalovirus. Our group is made up mostly of parents
and grandparents of children born with congenital CMV. Other
members may be special educators or nurses/therapists interested in
learning more about educating or treating children with CMV.
Other members may be adults with CMV simply trying to learn more
about the virus. Right now we have members from the United
States, Canada, Mexico, England, France, Holland, Japan, Indonesia,
New Zealand, and Australia. The states currently represented
are Alabama, Alaska, Arizona, California, Florida, Idaho,
Kansas, Kentucky, Louisiana, Massachusetts, Michigan, Missouri, New
York, Oklahoma, Pennsylvania, Texas, Utah, Washington and Wisconsin.
The children currently represented range in age from 1 month to 19
years.
The group was created in 1998 by a
mom that adopted a baby girl severely affected by congenital CMV.
She wanted to create a way for members to easily interact with other
members, such as parents/grandparents, caregivers, therapists,
doctors and nurses who work with CMV kids, anyone currently infected
with CMV, and those researching ways to conquer CMV. She and
the other members also wish to educate the public about the dangers
of CMV and ways to prevent more babies born with birth defects from
it.
We all love the list because it
gives us the opportunity to ask questions, share ideas, offer
support and encouragement, share frustrations, and rejoice in our
triumphs with others who understand. A huge benefit of being
in this group seems to be the realization that "we are not
alone" in our struggles. Since the doctors insist that
CMV is so "rare", we've had difficulties finding
knowledgeable people that can help us deal with problems associated
with CMV. So our members can also help each other by sharing
names of recommended doctors/therapists and by sharing other
resources. Our members are the greatest; always willing to
jump in with suggestions or advice or just to offer prayers and a
shoulder to cry on. If you would benefit from being a member
or feel that you have something to offer others, please join
us. |
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